FROM THE HILL AT HOPEWELL »

PERSPECTIVE.

it has been a week full of administrative duties for grayson!  scheduling upcoming therapy, working on getting all of his early intervention services in place along with setting the stage for his future education has kept me busy.  and we still have more to do… more people to meet, places to go, and things to accomplish!  there’s so much that goes into getting all of the correct services in place.

as i have seen things progress with grayson over the past six months or so, it makes me want to push even harder for what is in his best interest.  and that is getting him everything that he needs so that he can excel to his full potential. there was a time that i didn’t really want to publicize his delays. i wanted to just kindof put up a wall.. and keep it sortof under the radar.  i have learned that i just cannot control what other people think or say… much less let it affect us and our journey and our child’s future. i’m to the point now that i have let all that go.  i think it’s just part of the process, though. every parent has to go through things and deal with any issues that their children may have in their own way, and in their own time.  we could just mosey on along.. get him a little speech therapy, keep it all hush hush, and go about our way… not worrying about having a diagnosis. we didn’t choose to go that route though.  the reason is simple.  it’s because our ultimate goal is looking out for grayson and providing him with the therapy and services that he needs and deserves. you can call it special needs, special education, or special whatever.  label or no label.  my point is this:  it is what it is, and if our child needs it, he WILL get it.  he WILL have each and every opportunity that every other child has.  because he IS special.  and we are not ashamed.  no child deserves to be left out, left behind, or underestimated.

i’m sharing this just to say that i love that people are different… different views of life, different ways of learning, and different ways of doing things. i learn new things everyday and i know i still have alot to learn.  i just hope that i continue to find beauty in all of this. and that my perspective keeps moving forward.  i also hope that people open their hearts and minds and realize there are other possibilities sometimes that might be out of their comfort zone.  and that there are all kinds of lives to be lived, and not to be judged.  i have changed my perspective because i had to.  now it is societies turn to change theirs.

Tonya Johnson - August 11, 2012 - 3:12 am

Lauren,

I wonder why we change so much from the way we are as young children? During that time we really liked to show off our differences and often would have so much pride about something that made us different. But then as we age we have a tendency to want to hide our differences, downplay them, be ashamed of them.
When my son was diagnosed with Asberger’s syndrome, I know I was very upset at first, then sad, then resigned to the fact and now I just realize that it is what it is and he is still HIM. He is who he is and yes, he may have some quirks but who doesn’t? It did take me awhile to even mention his diagnosis in conversation with people but now it feels normal to me.
Basically, I guess what I am saying is that differences are what make us human and we should appreciate them. I appreciate my sons as there is no one else in the world like him (or me, or you, or Grayson).
And I hope that people will learn to be more compassionate the more they get to know about Autism in general.

All in all…..you are understood and definitely NOT alone. :)

chuck donofrio - August 11, 2012 - 5:48 am

For I know the plans I have for you, “declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.- Jeremiah 29-11

Nothing happens without God planning it which really means there is no coincidences because God plans it all out. God has a plan for everyone. We will not know that plan until he wants us to know it. We can’t do anything to change that plan because God had it figured out before you were even born.

Just remember God has a special plan not just for Grayson but our whole family!

We love you all,
Chuck, Bev, Anthony, Kaitlyn, Seth

Elaine - August 12, 2012 - 4:54 pm

Hang in there.sometime you will feel like you are pushing against a brick wall, but keep pushing if it is something that is right for grayson,or just climb over to get what he needs. i know our circumstances with my mathew were a lot different than yours but a special kid is a special kid.i was told one time (by an educator)” you don’t want to lable him special ed”. i answered them with a yes i do !!! if that will get him the services he needs. you are not alone.

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